Kinsley has been tube free for two full weeks.

This is a big deal.

Sometimes I look at this little girl and I think about how far she’s come and it blows my mind. It’s crazy to think that just a few months ago we were in the NICU waiting to hear the results of her TEF repair surgery, and whether or not they were even able to connect her esophagus together, and just since then she has spent 6 more weeks at the hospital, had two esophageal dilations, went through 15 weeks of feeding therapy, and now shes been eating solely from her bottle for two weeks straight.

To some people none of this sounds like a big deal because they don’t have an understanding of everything that we’ve had to do from the start to get to where we are now. But to those who have followed along closely and have been updated along the way, they know that Kinsley feeding with a bottle is a HUGE accomplishment.

For the sake of documentation, I want to let this post serve as a record of Kinsley’s biggest achievement thus far.

Kinsley was born on the 25th of June at 7:37pm and she was on her way to the Helen DeVos Children’s Hospital before the night was over because of her congenital defect TEF. She left Petoskey around 11:30pm and arrived at DeVos the following morning between 5:30 and 7:00am. After her arrival, specialists, neonatologists and surgeons met, confirming that she would have to have corrective surgery to properly disconnect her esophagus from her breathing tube and connect it to itself.

On the 27th, at a whopping 36 hours old, she had that surgery. I can remember waiting in the room to find out if they would actually be able to connect her esophagus to itself. Sometimes if the disconnect is too large, the surgery is put off until the baby has grown some and the esophagus is at a length that minimal stretching needs to be done to reconnect it. At the time this was my worst fear.

The surgeon came into the room and informed us that everything went well, though. Those fears were exonerated. He told us we could see her once they moved her to the recovery room, and he said that she would not be on a ventilator, as she was his first baby ever to come out of the surgery and not need one.

At that time I knew for a fact that we had ourselves a true fighter.

But I didn’t know to what extent she would have to fight.

Leaving the NICU 45 days later, I was well prepared for esophageal issues. I wasn’t well prepared for respiratory issues. I knew she would have to have dilation procedures to stretch the scar tissue that formed in her esophagus. I didn’t know that she would struggle every day to breathe, or what kind of impact that would have on her feeding.

Feeding therapy was a struggle all on it’s own. It took two weeks for the therapy place to fit her into the schedule. Even then, we met two times a week with a therapist and at first, for over ten weeks we just worked on oral stimulation because it was clear that Kinsley’s breathing was too unstable to handle liquid being added to her mouth. Her tests showed that she was aspirating, and liquid was going down the wrong tube, even though she showed no sign of it except on the esophogram.

To add, her suck-swallow-breathe patter was nonexistent. She had no control over feeding skills. It simply wasn’t there for her. This was hard for me to grasp. A skill nearly all babies are born with and have inherently, my child cannot perform. But this journey taught me patience and understanding like I have never known, and I eventually was able to accept that it would be harder for Kinsley to eat, but that doesn’t mean that she never will.

So we stuck with it. I dragged myself out of bed, half zombie, half mom, and I took my tiny baby to therapy twice a week, even when it felt pointless. Even when it felt like everything we were doing at therapy I could do at home. Even when it felt like the therapist could have been doing more. Even when it felt like I was over extending myself to get through so that important tests and appointments could be scheduled. We fought together, and I’m proud of that.

When a swallow study was finally ordered, we drove Kinsley to Grand Rapids and in a couple weeks the results were released. She had control over her swallowing, it was perfectly timed. She was no longer aspirating, and everything was going where it needed to go. She still needed to work on her rhythm, but we had the okay to start giving her a bottle.

I waited even after that because I wanted to be sure. I wanted all of the doctors to be on the same page. I wanted her ENT, Surgeon, therapist, and swallow study technician to all be looking at the same results and coming together with a cohesive plan to get her moving in the right direction and ultimately further her development rather than view only one piece of the puzzle and put her back.

It was the right thing to do.

Her therapist ordered a special bottle for her, one with notches on it that could control the flow, and make it even slower than a premie nipple, that way she could handle the liquid at whatever speed she was at without choking.

The struggle did not end with all this good news.

On December 14th, around 11:50 pm Kinsley pulled her tube out. She was doing well with oral feeds so I decided not to put it back in until I needed to. From that day forward, she went 5 days straight without any problems at all. Until one evening when she started to have an episode where she was breathing heavily, face turning red, and not taking the milk without making a mess all over herself.

We weren’t sure if she was just tired, or we were holding her in a way that wasn’t conducive to sucking and breathing, but we kept trying. She barely made it through that feeding and at the next she started to choke and she stopped breathing.

I held her in the rocking chair as her lips turned purple and her chest heaved as she gasped for air, a fish out of water.

I remembered the nurses direction when we were in the nicu, so I straightened her body out, held her chin up so her neck was straight and her airway open and I patted her back until she cleared her airway and started to cry.

It was a terrifying moment for all of us.

The next day we had feeding therapy and I told the therapist what happened. She suggested we hold Kinsley a different way while feeding her, because side lying is much easier for babies to swallow and breathe. She also had me schedule an appointment with the pediatrician to make sure her lungs were clear.

The next day we arrived at the pediatrician office and after her examination we found that Kinsley’s lungs were clear. Even in her choking episode everything managed to go down the correct tubes. Since then we have been feeding Kinsley with her body straight and head to the side and she has been doing great.

A few days later we accidentally broke the tabs off her special bottle. Since that happened we’ve been using the bottle and premie nipple we started her on in the NICU and she has yet to have a single episode.

She’s been two weeks tube free now.

As it turns out, the struggle was not so large that it could not be overcome. Kinsley comes from a family of fighters, so I should have expected it would only be a matter of time before she was able to break through.

However, it’s not completely over yet. Kinsley will still continue therapy twice a week until she’s able to use a regular slow flow nipple with the bottle. Then she will have checkups regularly from there forward.

Despite the long road we took to get here, we are so happy to have finally reached this destination. It’s the best Christmas present we could have asked for.

Happy Holidays, friends.

Kinsley: Update 7.25.17

As some of you know, Kinsley had a video swallow test and an esophogram yesterday, July 24th. Today I met with a neonatologist and the feeding therapist to discuss the results and the course of action we need to take next.

The results of the esophogram show, in simple terms, that where Kinsley’s esophagus was sewn together one month ago in her first surgery, that area has healed and is very narrow now. The video clearly shows the food coming to that point and then getting stuck because it is too narrow to go through; it looks much like an hourglass if you can imagine that. The food is piling up before the tiny opening and then slowly dripping through the surgically repaired area. This is dangerous because the food could build up so far that Kinsley could choke, or spit up which could irritate the supraglottoplasty surgery that she had on her airway July 20th. Because of this, the Neonatolgist, ENT and the feeding therapist have decided it best to stop oral feeds for the time being.

Even if this was not an issue, the video swallow test shows another reason oral feeds are not safe at this time: the feeding therapist explained that Kinsley is swallowing food and some of it is going into her trachea where it could go into her lungs and cause pneumonia or other respiratory infections which could be life threatening at this point in her development.

These two issues must be fixed before Kinsley will be able to feed orally and without her feeding tube.

To solve the narrowing of her esophagus at the surgical repair site, Kinsley will have to have another surgical procedure, where she will be put under and a balloon will be inserted into her esophagus and blown up to try to stretch it and ultimately make it wide enough for food to pass through without getting stuck and building up.
To fix the issue of her swallowing and food going down the wrong tube, she will have to go through feeding therapy for 8 weeks where she will be fed 10-15 milliliters by a feeding therapist once a day every single day for about 2 months. She cannot begin this therapy until her dilations to her esophagus are complete. She will have her first dilation in two weeks as the surgeon wants to be sure her last surgery has healed properly. After the first dilation the doctors will wait a couple weeks to see how successful the dilation was; sometimes multiple dilations need to be done to open the esophagus sufficiently because it can close back up. As long as Kinsley’s surgical repair site isn’t too fragile and the tissues can handle being dilated again without risk of rupture, they will perform as many dilations as necessary. Only when the dilations are complete will she begin therapy.

While the dilations have to be done at DeVos, the 8 weeks of therapy can be done at home. Unfortunately, the therapy once a day is the only time she will be able to feed orally, which means she will come home with a feeding tube in her nose. There is talk of putting in a Gtube in her stomach, but she will still have a tube in her nose because it is holding her esophagus open and preventing it from becoming so narrow it closes off. We will feed her through the tube except once a day when a feeding therapist from McLaren Hospital in Petoskey will come to our home and do the therapy with us and Kinsley. After 8 weeks she will have another swallow test. If she passes it (no food is found going into her trachea) then she will no longer need to be tube fed, and we can finally go to oral feeds.

We have a long road ahead. At least one month and a half at the hospital for the dilations, and possibly longer if she needs more than 1 or 2 dilations. Then two more months at home of tube feeding and feeding therapy.

Kinsley is one month old today. According to this plan as of right now, she will be 2.5 months or older when we are able to go home. (Obviously subject to change).

Please keep praying and sharing our story.



Kinsley Estelle June 🌸

I want to share a piece of writing that means more to me on this day than any other words have in my life:
“As you do not know the path of the wind, or how the body is formed in a mother’s womb, so you cannot understand the work of God, the Maker of all things.”  Ecclesiastes 11:5

I have no understanding, and there is no logic to what I feel, but if there is anything I am certain of, it is that she is ‘the work of God, the maker of all things.’

Welcome to the world, beautiful baby girl.

Kinsley Estelle June Hoebeke
6lbs 11oz
19.5 in long



It’s officially been 39 weeks as of today. What a wild ride.

I don’t think my belly has really grown or changed a whole lot in the last few weeks. I have been at 132.4 pounds for the past 3 weeks at least, which means I’ve gained 14 pounds since the first time I was weighed at the doctors during my 12 week appointment. I still have no stretch marks.

This will be my last “weekly” belly post, because we won’t make it to 40 weeks due to being induced Tuesday at 39 weeks and 4 days. If I end up having the baby on that day, Tuesday, June 27th, that is as far as my pregnancy will reach, and your last belly photo ever with Kinsley on the inside will be Monday the 26th.

That’s the day after tomorrow.

It’s still sinking in.

I was at Starbucks yesterday and one of my favorite baristas asked me when I was having my baby and when I told her I added, “the next time you see me here I will have a tiny baby with me!”

I left the store, chai tea latte in hand, thinking, holy shit, the next time I come here I’m going to have a baby with me. 

I think that’s when it really sank in for me. The next time I do just about anything that I’m used to doing, it will be with a baby.

I’m so excited and so scared and so nervous, but I’m as ready as I’ll ever be and I have a feeling that once I hold Kinsley June for the first time, nothing else will matter.

So, now for a little information on our induction:

Monday night I will go to the hospital at 5:30 pm and they will give me a pill that should thin my cervix the rest of the way (I was at 70% last Wednesday) over a period of 12 hours. Around 6am the following morning, if I haven’t started having contractions on my own, the doctors will give me pitocin to start hard labor and complete dilation and I should have my baby sometime after that…who knows if it will be 5 hours or 25 hours. Only time will tell. If her heart rate is stable through the pitocin and contractions we will continue until natural birth, if not, I will have an emergency c-section.

When Kinsley is born I am planning to allow visitors when I am ready, but there will be no cell phones and absolutely no photos whatsoever, except on mine or Nick’s cameras. I know a lot of people who posted photos to Facebook and other social media sites immediately following the birth of their child, and that’s fine for them, but Nick and I have decided that we want to control what goes on the internet, as this is OUR child.

Initially I was worried that relatives and friends would be upset that they couldn’t leave with photos of their own on their mobile phones, but a few things as of late have strengthened my perspective on the whole ordeal, so I am standing firm with my rule: no cell phones or photos taken in the room.

There are people on Facebook who have recently had babies who I am not even friends with and was still able to see a dozen photos of their child not 2 hours after it was born. This is a very special event and the privacy surrounding it is very important to me. In my opinion it’s not meant to be shared with people who aren’t friends or family, yet I was still able to see tons of photos from way outside the box without even trying. I’m not allowing this to happen with my child, and the only way to know for sure who the birth of my daughter is being shared with is to limit it to only myself doing the sharing.

At this point, everything is ready, washed, sterilized, organized, put away, set up, in place, cleaned, looking perfect. I have my breast pump, the hospital bag is in the car, the carseat is installed, the changing table is ready to go, the bottles are on the counter in their basket just in case, all newborn clothes are ready for wearing.

I’m ready. Nick’s ready. She’s ready. We’re all ready. I promise to share one photo at least 😉 I hope you guys are ready.





It’s Monday, and I think Nick and I were really hoping for a father’s day weekend baby, but she is still tucked away safely in my belly, doing her own thing with no real intention to come out according to any schedule we make.

That’s okay, though. The weekend was a little frustrating, because even though she obviously had no intention of making her arrival, she sure made it seem like she did.

I had an appointment on Thursday, June 15th where we underwent our second stress test and passed with flying colors. The doctor checked me for the first time and explained that I was 70% effaced and dilated to 1cm. She explained that while she has no special calendar that tells her when a baby will be born, based on what she knows and what she’s seen, she would say that Kinsley could arrive sometime within the next week or very shortly after.

To me this made sense. I was 37 weeks and 5 days at the appointment, and a week from then would put me at just about 39 weeks- a good time to have a baby.

She explained that if everything looked good and we were still moving forward without any real danger or complication, she was okay with talking about the possibility of inducing the last week of June, any time after my 39 week marker, which is June 24th.

I left the appointment hopeful that we could have a baby in the next week, but things seemed like they might be going faster than the doctor anticipated when I started having contractions the following afternoon.

The contractions I had Friday were inconsistent and not painful, so I chalked them up to braxton hicks or maybe early labor, knowing that it wasn’t time for her to come yet. The following day Nick and I were up before 8 am and the contractions had already started by 7:30.

I kept a running list the entire day Saturday of each contraction and how long after the previous one it had occurred, keeping in mind that the doctor said if they are 5 minutes apart consistently for an hour or more it might be a good idea to come to the hospital.

There were several periods where the contractions were 4 and even 3 minutes apart, but they still weren’t super painful, and even after 45 minutes of contractions 4 minutes apart, then the contractions would suddenly be 7 or 8 minutes apart for the next hour, so I knew that things still weren’t as consistent as they needed to be for us to go to the hospital.

We decided at around 1:30 pm that maybe we should take the dog for a walk to try to speed things up, since contractions from 7:45am till 1:30pm aren’t exactly the most fun way to spend the first half of your Saturday.

We walked for an hour and a half and toward the end of the walk, especially when we got home, the contractions seemed to be stronger, so we decided we should go to the hospital and find out what kind of progress my cervix had made and if we were close to Kinsley’s arrival.

We spent the next 4 hours in the hospital. I was checked again, and to my surprise I was still only 1 cm dilated. The nurse explained after hooking me up to the monitor that while I was having a lot of contractions, no labor was being done on my cervix, so I wasn’t dilating any further. She told us that there was a good chance I’d been having contractions for so long because my uterus was irritated and I may have been dehydrated.

She had me drink two glasses of water and monitored the baby’s heart rate for a little while before offering us a solution.

She said that everything looked good but that these contractions were not active labor, so if I wanted to go home and be able to relax and get some sleep, the best thing they could do is give me a shot that would relax soft muscles like my cervix so that the contractions would let up. She explained that if the contractions were true labor then the shot would do almost nothing, and in two hours the contractions would return.

I really don’t like medicine of any kind. I’m really not into taking things that my body doesn’t create itself, especially when the benefit to taking said medication isn’t outstanding. So this was tough for me, but we decided that we really wanted to know if this was true labor, and the only way to do that was to have the shot and wait a few hours.

She put the needle in my left arm and whatever was in the syringe made its way into my bloodstream. Within 18 minutes the contractions had almost completely stopped. She unhooked me from the monitor, but not before telling me how absolutely adorable my bump is and saying five times how exceptionally healthy Kinsley must be because of the results she was getting on her monitor. She sent us home and told us that if the contractions started again and occurred 5 minutes apart and were increasingly painful, then I should come back, but until then drinking plenty of fluid was the best thing I could do, especially if I wanted the false labor contractions to stay away.

I wanted a chicken sandwich, so we went to BK and got one. Later that night I had a few contractions, and Sunday morning they began all over again just like the day before.

Since it was raining, and there was nothing we could really do outside, I decided to go grocery shopping, hoping it would loosen things up further and maybe the contractions would become real labor pain, but I had no luck.

I went to bed last night and woke up around 1:00 in the morning with really painful contractions that lasted about 5 hours, but were irregular so there was nothing to be done.

And now it’s Monday and I’ve had a few contractions but nothing like the weekend. My next appointment is Wednesday and hopefully then there will be some talk of inducing since they are legally able to this Saturday. The sooner we have Kinsley, at this point, the better, because Nick would really like to work 4th of July week for the overtime and holiday pay benefits, rather than end up taking it off for Kinsley’s arrival. Obviously he is prepared to do whatever, but the extra cash from working the holiday would be nice.

That being said, if we can schedule accordingly, it won’t be unlikely that Kinsley be born the beginning of next week. Fingers crossed that I can be induced as early as June 26th, one week from today!

We were totally ready for a father’s day weekend baby, and now we’re even more ready than before! 

Kinsley June, feel free to join us any time. 🌼



What you need will find you.

For some reason this morning I decided to take a little journey back in time using my Instagram feed. If you’re close to me you know how much I love taking pictures, and even if you’re not, you only have to be one of my followers to know what an Instagram whore I am. Contrary to belief, I don’t post these photos for anyone but myself.

A lot of people use Instagram to promote popular brands or mainstream labels, but for me Instagram is like a diary, a way to quickly blog something that’s just happened with a photo and caption so I can revisit that slice of my life at a later time.

Trust me, it works really well. I got a taste of just how well this morning.

I had just taken the dog outside, it was our second time out since 5 am, and I was really grumpy. I was tired. I was annoyed, ‘how does he have to poop again?!‘ I kept saying over and over again in my mind.

But we got outside, and we walked for a while, and when we got to this little field that we visit sometimes behind the association we live in, I just kept looking at all the tiny daisies and how nice they look in this field and I started feeling sort of strange.

I started feeling really grateful.

I was out there, letting this little dog drag me around through these weeds, but at least they were pretty weeds, and at least he’s a sweet, cute little guy, and at least I’m well enough to be out here in these weeds breathing this air and standing on this soft ground, looking out at these apartments I’ve come to really like the past six months.

A year ago I don’t know if I could say these things. I don’t know if I could look at all this with the positive perspective that I have now. One year ago I was a completely different person, an extremely unhappy person, pretending to have it together, and I was in a totally different, miserable place.

When we got back into the apartment I sat down and pulled up my Instagram feed just to see what exactly I was doing, to the day, a year ago. I found these two photos, among several others, that mark the early summertime period we’re in now, 365 days ago.

It’s hard for me to look at these photos.

To someone else it looks like I was reading Game of Thrones at the beach during the day, and snuggling my kitty in my comfy bed at night. But I know better than that.

I was extremely depressed. My close friends knew it and they kept telling me that I should talk to someone, I should see a doctor and get help trying to take care of it. But I didn’t want to. I wanted to be normal and okay and I wanted to be able to figure it out myself, on my own, like everything else in my life. I wanted to feel in control.

I was trying so hard, but the longer I waited to see someone the worse it got, and the more out of control things became. I never ended up seeing a doctor. Instead I wound up pregnant, which was probably the best thing that could have happened to me, even if I didn’t realize it then.

Last summer was a scary time for me. It was dark and exhausting. I was drowning but I wanted to be the one to pull myself to safety, not realizing that sometimes you can’t do it- you need help. I can look back at the photos from my Instagram feed during that time and know exactly what I was going through. I can remember exactly how I felt and the pain that I was in like it was yesterday.

But I haven’t felt like that in several months (the first few months of my pregnancy were really terrible, as bad as the summer was, because we were in such a pickle and just couldn’t grasp what was happening, but we finally did and since then everything turned around). I’m so thankful for that. It was like becoming pregnant gave me a totally different perspective on life, and gave me the strength I needed to pull my head out of the water I was drowning in.

Friends of mine have told me that they haven’t seen me this happy in a really long time, maybe since high school. I know that every day I wake up feeling okay is a good day, and I rarely have bad days anymore. I’m glad I kept going, and got to see things turn around in my life. I’m not saying everyone who feels depressed should get pregnant, but you should definitely keep going, because some way, some how what you need WILL find you. If you’re struggling, just keep going. Everything I went through was worth it.

Here’s why: It might be a strange thing to say, but I’m so grateful for that hard time I went through, because it really helps me appreciate how amazing my life is turning out to be now. I don’t feel sad every day anymore. I don’t feel like sleeping every second because I don’t know how to deal with the next several hours. I don’t hate where I’m at and what I’m doing. I’m not so distracted by how much I’m hurting that I can’t notice things like daisies in a field. I don’t feel like I have to pretend to smile, I just do it- without thinking.

Maybe that’s what I’m most grateful for. The chance to finally smile, and feel like things are exactly right.

The more I think about it, even when I’m grumpy in a field and the dog is pulling me through the mud and I’m panting and annoyed, I realize that things are still hard, there are still struggles in my life and times when things don’t go according to plan. Things are not perfect or easy by any means, and once this baby is born things will only get harder, but I’m still grateful. No matter how hard it is, I am grateful and I’m genuinely happy. And that’s how I know I’m better; that’s how I know things are exactly like they should be right now.

Everyone deserves this feeling. So if you’re in a tough place, just keep going. What you need will find you. It found me.

Update: Pray

 One week ago I began writing this post, when the expiration date on the milk jug in our fridge said 06/06/17. I kept thinking, how can that be…? However surreal, it was a fact.

That morning I poured myself a colorful bowl of Captain Crunch and sat down at the table, thinking about the fact that I realistically could have a tiny baby in my arms before the milk on the shelves at the grocery store became expired, and that was so strange to me.

Today is the 31st of May, and we are only 31 days from my doctor given due date. At any time during the next four weeks I could deliver my baby. One week ago that surreal fact excited me, but it doesn’t today.

This morning I sat down at the table with a bowl of chocolate chex. By the time I had finished swirling my spoon around in the white-turned-chocolate milk, the cereal was soggy and I was so filled with worry that I couldn’t eat it, so I poured it down the drain.

I kept thinking, how can this be…? However surreal, it is a fact: yesterday at Kinsley’s 36 week ultrasound, the doctor came into the room and said to Nick and I, “your ultrasound gave us an interesting surprise today,” and he described the potentially dangerous complication that was found.

According to the doctor, Kinsley will be a baby born with a Single Umbilical Artery or SUA. What this means is that Kinsley’s umbilical cord only has two vessels, a vein to take things to her, and one artery to take things away, where a normal umbilical cord is made up of three vessels total: two arteries and one vein.

Anywhere from half to two-thirds of babies born with a single artery umbilical cord are born healthy and with no chromosomal or congenital abnormalities. Of the remaining babies born with SUA, studies suggest that about 25% have birth defects, including chromosomal and/or other abnormalities. These can include trisomy 13 or trisomy 18, however, the most common pregnancy complications that occur in infants with SUA are heart defects, gastrointestinal tract abnormalities, and problems with the central nervous system.

The doctor explained that while it isn’t a normal thing, it isn’t the rarest complication ever to exist, and it isn’t super uncommon. He mentioned that sometimes these babies can be born with congenital defects like double uteri or two ureters, some babies can be born with organ abnormalities like having one kidney or three, or two where only one works properly, and other babies with SUA are 100% healthy as if having only one artery in their umbilical cord had no effect on them whatsoever. He said that in extreme cases, these babies are born with chromosomal defects, where they have more than one copy of certain chromosomes, like #13 or #18, in which case ultrasounds will pick up serious and sometimes fatal organ damage or delayed development.

Our doctor told us we shouldn’t be worried about those things because all of our ultrasounds have come back perfectly normal, and none of the typical symptoms of these abnormalities have been found on our scans. Typically, a baby with SUA that has chromosomal or other abnormalities will be born before 37 weeks, and will show signs like low birth weight, a sloping forehead, organ damage/extra organs/two few organs/organs in the wrong place, stunted growth, extra fingers or toes, etc. However, Kinsley is weighing 5 pounds 8 oz at 35 weeks and 4 days, which is one quarter of a pound larger than typical babies at 35 weeks, and much larger than babies with abnormalities.

The doctor informed us that since ultrasound scans are very good at picking up abnormalities, due to the fact that we have had normal ultrasounds it is likely that our baby will be born without any congenital or chromosomal abnormalities. Nothing is 100%, and we will not know for sure if she is completely healthy until she is born, but he has instructed us not to worry until then.

All of my remaining weekly appointments have been changed to include non stress tests (NST) which will take place at the beginning of my appointment. I will go in and they will put straps around my belly to monitor Kinsley’s heart rate better. When she is moving her heart rate should increase and when she is at rest it should decrease. If this is the case, the test results will be deemed “reactive” and no issues will be found. If not, sometimes further testing will be done to determine if she is getting the oxygen she needs from the umbilical cord despite it having only one artery.

The doctor explained that if it is determined at any of these appointments with non stress tests that Kinsley is not getting what she needs on the inside, they will schedule a cesarean and she will be born early to ensure she is able to get what she needs. He said it is common for babies with SUA to be born early, and by cesarean. In addition to that, my ultrasound shows that I have extra fluid, which may also cause me to go into labor sooner. He laughed and added that this extra fluid is also the reason I am measuring a bit bigger than most women at 35 weeks, and is likely the cause of most of my discomfort.

Before we left the appointment he assured us that babies with SUA are born healthy all the time, in fact, he delivered over the weekend with a single artery umbilical cord, and that woman’s baby was perfectly fine.

Of course, nothing is 100%, and that’s the thought that had me in tears on the phone with my mom last night as I told her the worst that can happen to this precious child.

Nothing is 100% is all I could think as I tried not to sob while chopping the vegetables for our stir fry last night.

Nothing is 100% ebbed away at my glass half full for the rest of the evening, even when Nick hugged me and told me not to worry because everything will be okay and he needs me to be strong for him too.

Nothing is 100% slammed around in my mind when I poured my soggy chocolate chex down the drain this morning.

One week ago I sat down hardly believing that I could have a tiny baby before the milk in our fridge expires, and that’s still a very real and strange possibility. Today I’m eating my breakfast with excitement and worry over when she will be here, and I’m praying, too- for her, and Nick, and myself.

I’m not praying that Kinsley June is born ‘normal’ because she is already whatever she will be. I’m praying that when she comes I will be ready for whatever that is, no matter what the outcome looks like.

I hope you’ll pray for us too.